Description
The initiative aims to develop cooperation and exchange of experiences between the Frambu and ČAVO in the field of rare diseases and to define areas in which cooperation can be further developed so that we can create a preparatory project for the establishment of the Czech Educational Centre for Rare Diseases.
The bilateral initiative will build on and deepen previously established cooperation between Rare Diseases Czech Republic (ČAVO) and Frambu. The main outcome will be a Final report elaborated by Frambu and ČAVO outlining specific areas where it is possible to develop and draw on the
Summary of the results
The main goal of the initiative – development of cooperation and exchange of experience between the existing Frambu center and ČAVO in the field of rare diseases was achieved. ČAVO obtained a comprehensive picture of the system of care and information support for patients with rare diseases and their families in Norway. ČAVO received information about the history, establishment and development of the Frambu center''s activities, as well as the services provided by the Frambu center, their security, organization.