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Description
At present, patient organizations in the Czech Republic do not have the right environment to fulfil their role as an independent and competent actor in the field of healthcare. To this end, patient organizations need to be supported – through education, training and financial support and feedback and stimuli from patients themselves – care users – need to be brought to the table.
Patient hub should have particularly those functions:
- Space for education and training of patient organizations, individual patients and public in form of lectures, seminars, conferences.
- A web portal with online educational content and video footage taken from events taking place at hub: accessible to everyone. The portal will include a Customer Relationship Management (CRM) system for Patient hub team, which will make it possible to target information at individual patients and patient organizations more effectively.
- Space for networking and sharing experience and best practice amongst each other and with other stakeholders in health care (non-governmental organizations, medical students, doctors, academics, app developers etc.). The purpose is to improve communication between patients and other stakeholders and their mutual connecting.
The overall aim of the project is to strengthen and professionalize patient organizations so that they can be an equal partner to other health actors, who is able to effectively comment on legislative and non-legislative proposals and provide feedback and suggestions from users of care themselves, as well as providing them with services (providing and sharing information, counselling, self-help activities etc.).
The target groups of the project are patient organizations, that is, representatives and members of patient organizations, as well as individual patients and public.