Empowering Patient Advocacy for SMA: A Bilateral Initiative Between the Czech Republic and Norway & Iceland

Czech Republic (CZ)

Bilateral initiative facts

Promoter:
SMÁci, z. s.(CZ)
Bilateral initiative number:
CZ-HEALTH-BI023
Initial cost:
€42,664
Initiative Types:
Capacity building and short-term training
Conference
Partners:
Medvind Independent Living AS(NO)
Programme:
Health
Programme areas:
Public Health

More information

Description

Overall Goal: To strengthen patient advocacy for Spinal Muscular Atrophy (SMA) in the Czech Republic and Partner Countries through collaboration, knowledge sharing, and capacity building.
Objectives:
Enhance awareness of SMA and patient advocacy efforts in both countries.
Improve the accessibility and quality of support and care for SMA patients and caregivers.
Strengthen the influence of patients and patient organizations on healthcare policies and systems.
Promote research and development of new treatments for SMA.
Key Activities:
Conduct a comprehensive assessment of the state of patient advocacy

Information on the projects funded by the EEA and Norway Grants is provided by the Programme and Fund Operators in the Beneficiary States, who are responsible for the completeness and accuracy of this information.