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Description
The ECOU project contributes to the achievement of the general objectives of the EEA Financial Mechanism by strengthening relations between Romania and the donor states, namely Norway, by continuing the exchange of best practices in the field of rare diseases and the development of medical institutions and services for patients with genetic and rare diseases from the two countries, thus contributing to the reduction of economic and social disparities in the European Economic Area. The ECOU project addresses a disadvantaged community, due to disabilities caused by rare diseases and isolation, regardless of ethnicity. We aim to increase prevention and reduce health inequalities for patients with rare diseases, using best practice examples from the Frambu Center in Norway.Prevention services are mentioned as a priority in the National Health Strategy 2014-2020, in the National Plan for Rare Diseases and it is a condition in the accreditation of Expertise Centers for rare diseases (WHO 540/2016).