Sequencing as a standard of care in the diagnosis of hemophilia and rare coagulation disorders in Romania

Project facts

Project promoter:
Asociatia Romana de Hemofilie(RO)
Project Number:
RO-HEALTH-0027
Status:
Completed
Donor Project Partners:
Reykjavik University(IS)

More information

Description

This project leads to the reduction of the social and economic disparities of the target group and to the consolidation of bilateral relations on the internal market of the European Economic Area, by implementing in Romania an early diagnosis program for the family of patients already known to have hemophilia and accessible to people belonging to vulnerable communities, including the uninsured and the Roma, the professional training of medical and laboratory staff and the organization of an extensive information and awareness campaign.The proposed project contributes to the social inclusion of people with hemophilia or rare coagulation diseases from vulnerable groups, including uninsured people and Roma, identified as one of the general priority objectives of the Financial Mechanism European Economic Area (EEA) 2014-2021, by providing a service equitable, sustainable and free medical care that allows early diagnosis of genetic hemophilia and rare coagulation diseases, early therapeutic intervention and significant reduction of the medical and social costs involved in the care of a late diagnosed patient. At the same time, the project directly responds to the objectives of the European Strategy for increasing the standard of living, considering that Romania is still one of the European countries with the highest level of poverty.The general objective of the project: Improving mobile health services in isolated areas with a vulnerable population, especially for the uninsured, by developing and implementing a diagnostic program for hemophilia and rare coagulation diseases for the benefit of the project''s target group, while ensuring the achievement . the goal pursued by the financier.

Information on the projects funded by the EEA and Norway Grants is provided by the Programme and Fund Operators in the Beneficiary States, who are responsible for the completeness and accuracy of this information.