""Comprehensive support for women with rare disease challenges""

Project facts

Project promoter:
Rare Diseases Croatia(HR)
Project Number:
HR-ACTIVECITIZENS-0117
Status:
In implementation
Initial project cost:
€86,045
Donor Project Partners:
Frambu Resource Center for Rare Disorders(NO)
Other Project Partners
CESI Centre for Education
Counselling and Research(HR)
Inclusive house Bell(HR)
National organisation rare diseases Montenegro(ME)
Programme:

More information

Description

Women are often in an unfair social position, and if they also belong to a vulnerable group that struggles with rare health problems and underdeveloped support system, their marginalization and discrimination becomes even more complex!

Problems occur in several aspects (social rights, psychological, medical) and are reflected in the functioning in business environment, private, social context.

There is no systematized approach that would provide comprehensive support from different areas.

The project introduces an innovative Case management (CM) model - a stable contact point, comprehensive, holistic, continuous, person-centered 1 on 1 approach, which includes a multidisciplinary team of experts and volunteers, providing legal, psychological, medical support and also information, education, networking, coordination of various external support resources. It is also the basis for data analyze in order to educate and raise public awareness and long-term sustainability.

The project also influences external circumstances through conferences and public campaigns / advocacy - in order to create public predispositions for the inclusion of empowered women and their rights. Therefore, social community is aware of the real problems faced by women, leading to a more inclusive, equitable community ready to accept vulnerable groups. CM and research will be extended to less developed and regionally different areas, which enables multiplication and decentralization of available support, but also generalization to related target groups.

Information on the projects funded by the EEA and Norway Grants is provided by the Programme and Fund Operators in the Beneficiary States, who are responsible for the completeness and accuracy of this information.