Self determination of people with cerebral palsy

Project facts

Project promoter:
Spanish Conferation of organisations providing services to people with brain injuries and alike
Project Number:
ES03-0028
Target groups
Non governmental organisation,
Disabled
Status:
Completed
Initial project cost:
€60,580
Final project cost:
€60,580
From EEA Grants:
€ 53,068
The project is carried out in:
Spain

Description

People with cerebral palsy with severe affectations in the speech and mobility, usually endures an isolation that makes their integration difficult and is at the origin of a dependent passive attitude. The project encourages the participation of adults with cerebral palsy in society and their immediate environment, as full citizens. This project aims at improving quality of life of adults with cerebral palsy, empowering them to participate in the decisions that affect their lives, as a fundamental principle of self-determination. We hope to raise awareness in ASPACE, the confederation of entities providing care to people with cerabral palsy in Spain. We also aim to improve the users' autonomy, in order to transform the business models of the ASPACE movement and its services, strengthening the participation's paths of users with cerebral palsy. In order to raise awareness amongst the entities of the importance of the users involvement, trainings will be offered to professionals, who will later put it into practice with the users. Once they have internalized it, there will be debates to agree on how the participation should be engaged and the working models in ASPACE.

Summary of project results

This NGO has been working for over 30 years with persons with cerebral palsy, but now thanks to the ASPACE Network – Active Citizenship all the services have been analyzed and re- designed with the direct participation of the voices and opinions of their direct beneficiaries. More than 400 people with cerebral palsy from all over Spain have joined the network, which has resulted in a guide called “Active Citizenship ASPACE: promotion of participation”, which is a reference point for the disabilities collective.

Summary of bilateral results