Norwegian-Romanian - NoRo - Parternership for Progress in Rare Diseases

Project facts

Project promoter:
ASOCIATIA PRADER WILLI DIN ROMANIA
Project Number:
2008/115272
Status:
Completed
Final project cost:
€2,109,764
From Norway Grants:
€ 1,874,000

Description

Romanian Pilot Centre for Network, Competence and Training for people affected by rare diseases, based on model from Frambu, Norwegian national centre for rare disorders and disabilities. The Norwegian PWS Association will follow the project through reporting from visits and meetings.