Supporting NGOs to improve end-of-life care
NGO 'Cesta domů' is working to ease the final choices of terminally ill people and their families in the Czech Republic and helping to make the subject of death less taboo.
“In a survey we carried out, responses showed that 78% of people would prefer to spend their final days at home. Instead, most of the 105 000 people who die in our hospice each year spend their final days in a hospital (60%). In comparison with Western countries, this percentage is rather high and there is no acceptable clinical explanation for it,” said Marek Uhlíř, head of the mobile hospice Cesta domů (The Homecoming).
With support from the EEA Grants, Cesta domů set out to improve the conditions of palliative care for the terminally ill in the Czech Republic and to take another step towards a change in the care system.
“Ten days ago Dad learnt that he has cancer. It is shocking for him and for us too. A month ago he was playing tennis with his grandson; two weeks ago we planned a vacation in the mountains – and now this. We don’t know how to talk to him.”
These are typical words that Uhlíř hears in initial conversations at the information centre which provides counselling in person, over the telephone or online to individuals who are dying, as well as to their caregivers and family members. For a person facing a critical illness, either his own or the illness of a loved one, navigating the treatment options, as well as caregiving services and social welfare can be daunting. It is often helpful to talk to someone from the outside, who is not personally involved in the situation and better able to consider the priorities.
As well as stepping up their service provision, Cesta domů has also been able to expand their information activities. The project finished in April 2016, with some impressive results:
- More than 2 000 clients received advice and support
- An ‘A-to-Z’ - ‘Home Care Guide’ - developed addressing the issues of how to take care of a loved one to make him or her feel better, and how to minimise burn-out for the caregiver
- An information leaflet called ‘Palliative Care in a Nutshell’ designed for general practitioners
- Three four-day courses on basic palliative care held for 100 medical staff - covering topics such as communicating bad news, honouring wishes expressed earlier or predicting the likely course of an illness
- Several lectures organised for doctors about general palliative care
Photo credit: Cesta domů
Raising Public Awareness about End-of-Life Rights and Care Alternatives
The hospice civic association CESTA DOMŮ (The Homecoming)
Type of Institution:
Other type of NGO
The majority of the Czech society never speaks about the end-of-life matters. Talking about dying and death is something we feel uncomfortable about, but it is something we all need to do - otherwise we may not die in the way we want. Our research shows that around 76% of people would prefer to die at home, yet around the same number dies in hospital. Dying persons are not perceived as a traditional minority; nevertheless they represent a vulnerable group of society whose rights are often violated, e.g. right to information and right to privacy are often not respected and they are often stripped of all their dignity. The project's main objective is to improve the availability of relevant information and thus encourage the changes of Czech society´s attitude towards the-end-of life matters and palliative care. Within the project we will work with health practitioners, the general public as well as regional initiatives interested in sharing experiences in providing end-of-life care.