Marcos' Centre-Information and Training
Summary of project results
This project aimed to empower the promoter, which addresses the needs of patients with rare diseases and their families, regarding, for example, the access to health care, education and employment. Awareness raising actions amongst schoolchildren exceeded the number of planned participants, and included the production and subtitling of films and its presentation. As a result from this project, the Norwegian partner may now use these in Norwegian schools as well. Also, exhibitions were held, and working materials were shared with teachers. The project was an important learning opportunity for both organizations. In close cooperation with the Norwegian partner, an information and training centre was also created to provide a place for training and for storing of learning resources. Target groups include professional caregivers dealing with rare diseases, patients, families and the general public. 439 people received training during the project, also exceeding the target number.
The project activities allowed both Raríssimas and Frambu’s personnel to get to know a different context from their own. The technical and organizational make-up of the organisations, and the approaches used to address the same problem, differ in the two countries and it was possible to learn from the contacts made between the two organisations. Throughout the project, it was possible to involve some public entities both in Portugal and Norway, namely in work meetings. No Bilateral Cooperation Initiatives were carried out in connection to this project, although it was reported that bilateral cooperation already existed between these organisations, and future activities are envisaged. Both entities (promoter and partner) benefited from the project, as both were able to contact a sister organization and learn new methods that may be incorporated into their organizations. For the Portuguese promoter, sustainability was a guiding principle in the activities carried out under the scope of this project – it is expected that these activities become regular and financially sustainable, contributing to the growth of the organisation.
The information on this page has been provided by the programme operator.