Marcos' Centre-Information and Training
This project will yield an important contribution for the empowerment of the promoter, and similar organizations, in the promotion of equal opportunities and fair treatment to patients with rare diseases and their families, regarding, for example, the access to health care, education and employment services. The action plan will be divided into three components - awareness raising, data provision and training. Awareness raising actions will include the production of a testimonial documentary to be presented to schoolchildren, as well as setting up a photographic exhibition in a crowded public venue. The creation of an Information and Training Centre will provide a physical and virtual place - e-learning platform – for the promotion of training sessions and the sharing of information and materials, directed at diverse groups dealing with rare diseases, such as professional caregivers, patients, families and the general public. The project´s partnership includes public and private organizations of recognized standing in social action, training and rare disease matters, and the participation of a Norwegian counterpart NGO should also be highlighted.
The information on this page has been provided by the programme operator.