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Frontpage News 2014 Improving the quality of life for patients with incurable illnesses

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Alex Padureano, Director of the Hospice together with the nurse Alina Bratu and the patients Dumitra, Medelea and Alexandrina. Photographer: Financial Mechanism Office

Improving the quality of life for patients with incurable illnesses

  • “After my breast cancer surgery I was just sent home and asked to relax. Here at the hospice, I receive the treatment and therapy I need to recover properly,” says Manuela, one of the patients at the Hospice Casa Sperantei in Bucharest.

    In late October 2013, Manuela was diagnosed with breast cancer. She had her operation in May this year and discovered afterwards that she had got lymphedema in her left arm – a chronic inflammation that develops slowly over time. The swelling can range from mild to severe, and women with breast cancer are especially at risk because of the radiation treatment. At the Hospice Casa Sperantei, Manuela has access to a sequential pressure pump, a device that helps to diminish and control the swellings.

    “My arm became very swollen after my operation. This is something I probably will have to live with for the rest of my life, so it is very important for me to get this sort of treatment,” Manuela explains.

    Manuela used to work as a teacher before she was diagnosed with breast cancer. She hopes that one day she will be able to start working again, but for now her focus is on full recovery. She is still awaiting some tests results but remains optimistic. The time leading up to her operation was the hardest to cope with. However, also in the time immediately after, having a good support system in place was crucial.

    “It has been painful at times, both physically and mentally, and was very tired after the operation. Therefore, it is good to have a place where I can go and talk with someone about the illness.”

    Providing holistic care

    The Hospice Casa Sperantei receives funding from Iceland, Liechtenstein and Norway through the NGO fund in Romania to improve the access to comprehensive care services for patients with incurable illnesses – either life-threatening or life-limiting.  The project will provide specialised care to 2000 patients – both children and adults - and their families, as well as training for 250 health personnel. Alex Padureano, Director of the Hospice Casa Sperantei, underlines the importance of having a holistic approach:

    “The diagnosis and individual circumstances vary, so we try to adopt the treatment to the needs of the patients and their families. Of course, pain management and the medical side of it are very important, but so are the practical and social aspects.”

    Hospice exterior 6Small The Hospice Casa Sperantei in Bucharest. Photo: Hospice Casa Sperantei

    Sharing common experiences

    Dumitra, Medelea and Alexandrina are sitting in one of the living rooms at the Hospice. Like Manuela, the three ladies have all had breast cancer – in addition to other illnesses and need to use the sequential pressure pump to control and diminish the swellings in their left arms.

    Dumitra lives outside of Bucharest. Despite having to travel quite a distance to get to the Hospice, she tries to be there as often as possible:

    “I did not know that such services existed, so I am extremely happy to have found this place. Here we can talk about how we are dealing with the illness and share common experiences.”

    Alina Bratu is a nurse at the Hospice. She emphasises that it is possible to enjoy life, even with failing health:

    “Sometimes we organise events outside the hospice facilities. Both the women and the staff take great pleasure in these events.”

    About the project

    The project receives €231 758 from Iceland, Liechtenstein and Norway through the NGO fund in Romania. The project started March 2013 and will end April 2014.

    Read more about the project here

    Read more about the NGO programme in Romania here

  • Country:

    Romania


    Project title:

    Integrated palliative care services for patients with life threatening illnesses

    Project number:

    RO09-0002

    Priority sector:

    Civil Society

    Grant:

    € 231758

    Status:

    Completed

    Project promoter:

    Hospice Casa Sperantei Foundation

    Type of Institution:

    Foundation

    Project duration:

    25 months

    Project cost:

    € 330,800

    Grant from:

    EEA Grants

    In Romania, the existing specialized palliative care services cover only 5% of the persons needing these types of services (as of 2012). The objective of the project is to increase access to socio-medical palliative care service for patients with life-threatening or life-limiting illnesses, in line with national priorities, through a Centre of Excellence integrating clinical, counselling, educational and information services. The project is expected to: increase the terminally ill patients and their carers’ capacity for self-help; increase Hospice’s capacity to provide socio-medical care to terminally ill patients in Bucharest and educational programmes on palliative care topics; provide a model for the future development of integrated palliative care services in Romania. The project will provide specialized palliative care and support for self-help to 2,000 children and adults (10% estimated to be from the Roma community) with life-threatening or life-limiting illnesses and support/guidance for their family members / carers; train 50 professionals, 100 students from 2 partner nursing schools and 100 Hospice employees and volunteers.